Saturday, August 9, 2008

We all have been enjoying the Olympics here since the opening ceremony last night. It's fun to watch something on television that we all enjoy watching together!

I have not spoken to Hannah's doctors yet regarding the osteopenia. The doctor was out of town all week, and I had been trying since Monday to get them to return my calls. I did get a message on Friday saying that all of her bloodwork came back normal, but that the DXA scans showed significantly low bone density. WHY? I didn't get to speak to the doctors yet so I don't know what their theories and suggestions are yet. I hope to connect with them on Monday. Hannah's other endocrinologist suggested doing HGH testing (growth hormone) to determine if all of that is functioning properly-with one theory being maybe there is an issue here since Hannah's bone age test showed she is only 6 years, 10 months.

Hannah spent the week at Camp Invention. The program was Monday-Friday from 8:30am-3:00pm. WOW! Hannah wanted to sign up for this when the information came home, and didn't know any other friends who would be participating. It took about an hour on the first morning before I was able to leave her there without crying. Each day got progressively better. She told me she cried each day at some point during the program (which she did almost every day in school last year too.) I spoke to the director the first day, and she already knew Hannah from scouts, and had spoken with Hannah's counselor to prep her on giving Hannah a little extra help/attention. I felt better leaving her knowing that. The staff was excellent, and Hannah really had a good time. She just loved inventing each day, and doing the crafts, etc. She said the only part she really didn't like was lunch! Here are a few pictures of her with her inventions. Her group created a spaceship (which Hannah ended up bringing home.) It covers the entire kitchen table, so it won't be there for too much longer! The other creation is her "alien" which she created from taking apart a non-working cd player and turning it into the alien. Very creative!
Kim



1 comment:

Anonymous said...

Hey guys! It looks like you continue to enjoy yourself completely this summer. Glad to see that you also enjoyed the camp you went to. It looked really neat...making inventions and all! I am so happy Miss Hannah that you continue to feel good and have fun. That is what summer is all about! :0)
Always beLIeVE-ing!
Bonnie and Gina
www.caringbridge.org/visit/ginamulieri