Sunday, May 3, 2009

I just finished updating our luminary list for our 2009 Relay and WOW, we have 79 total! It took me a while to enter all of the bags from Grandma K, she got orders for 35 bags from her friends in Arizona. Incredible! Thanks so much Grandma. There is still lots of time, so please let us know if you would still like to order. I will put the order information at the bottom of this post.

Hannah was out of school for a day and a half this week. The week before after her clinic visit, we decided to begin to reduce her medicine. She had been doing so well, she had begun to work out some of the emotional issues with school and it seemed a good time to try and reduce some of the medicine so she doesn't have to stay on them forever. All was good for the first few days, but I noticed she began to eat a bit less one night, then again the next morning. By the following morning, she had a full blown stomach ache of days past. She agreed to go to school, with the agreement that if she was really feeling badly and wanted to come home, it wouldn't count against her for the hamster deal. By noon, I got the call and went to pick her up. She had not eaten all day, and came home and slept until I woke her at 5pm. She may have slept through the night, she really didn't want to get up. I started her again on the medicine dosage she had been at. The next morning, she still wasn't great, but better and went to school.

Friday she woke up with a sore throat. She got up and got going, but started crying that she had a sore throat and really bad stomach ache. I called the school to tell them she had the swine flu, which I guess was pretty funny to me, but not so much to them....ha ha. She went back to bed in the morning and slept until 1pm in the afternoon. She still didn't feel well and didn't eat anything until later that night. 

It seems that the medicine has now kicked in and she is feeling better in that department. However, he feet are really bothering her again. It is so strange, just out of the blue, her feet have really started to hurt again. She is limping and she was crying this weekend because it hurt her just to try and walk. It just so happens that her endocrinologist ordered a follow up dexa scan to check her bone density. We did get her blood work back and her calcium level looks good, her vitamin D level is a bit low, but not too badly. Her growth hormone is low, which isn't surprising to me. However, I am only interpreting the results from my limited knowledge level of endocrine issues. The doctor will put them all together for us after her dexa scan and bone age analysis. All so complicated.

The girls both had their piano recital today and did great. It's wonderful to be able to hear all of the kids and just relish in the beauty of the music they make. I do have a video, I'll post it here later. Here is a picture of Hannah with the brownies we made to take with us. We put musical notes on the brownies! 


Help us shed light on the fight…

Here is what we need if you are purchasing a bag:
Your name and address
Who is to be honored on the bag (in memorial or in honor of)
Any photos or artwork you would like included on the bag
Anything additionally you would like us to include on your bag
Your check made out to American Cancer Society-bags are $10 each, send to us at the address listed on the blog page. You can also pay via paypal, email address is

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