Sunday, January 10, 2010

Happy New Year everyone! I don't know about all of you, but I haven't been able to write the date yet correctly. Old habits, I guess. Just a brief update tonight. We had a fun New Year's eve here together. The girls stayed up for the big moment, we blew horns and threw lots of junk around the living room-which not only made the dogs a bit crazy, but woke up dad too :)

The new year started off a bit slowly, I was sick for about 5 days, most of that time spent on the couch. My theory is just a regular flu, compounded by this persistent lyme infection. My body just can't keep the lyme at bay while trying to fight off something that I could normally fend off rather easily. It's pretty frustrating, to say the least. I did find some old medicine here, and took that which made a pretty quick difference, but now that is gone, I am already starting to feel the aches return. I'm now on a new mission to find something that rids my body of this. Back to research.

Enough about me though. Hannah was out of school for a couple days last week. She has been complaining about stomach pains and headaches. In true Hannah fashion, this also happened the last time right before her upcoming MRI. She is scheduled to have her full brain and spine MRI this coming Sunday, the 17th one week from today. This one is not so much fun, it is very long (4 MRI's in 1), which lasts about 2 1/2 to 3 hours. We have to get special permission from the supervisor at radiology because they don't usually do these together since it takes so long and most patients can't do it all at one time. But, this isn't the first time, Hannah has done them together for the last 2 years. This is her 2 year MRI, pretty significant in the medulloblastoma world, because the highest rate of recurrence is within the second year after the end of chemo. After this one, they go to every 6 months, yeah!

Hannah has really been doing well. Despite this last week of issues keeping her home from school, and in bed for sometimes the entire day, I am feeling calm about her upcoming scans. I never knew that we could have an MRI on a weekend. After 2 years someone finally told me that scans could be done on Saturdays and Sundays! The only downside is a doctor won't be available to read the scan that day, so we will have to wait until the next day (or possibly Tuesday since Monday is Martin Luther King day.) Talk to me then to see if I am still calm by Tuesday.

Hope everyone has a good week, we'll update again when we have the news about scans-only GOOD news!

p.s. Please remember that if you would rather receive an email when this site is updated, rather than coming here to check in, please enter your email address on the home page, right underneath our address. It works!

p.s.s. Look at the new home page photo-it's Hannah on her 7th birthday, about 6 months before diagnosis. Wow.

♥Kim