Wednesday, January 19, 2011

Hannah's MRI results are in and all is stable! Whatever is now there in her head has not changed, which is good news. It's very strange for me to announce "stable." I have read blog after blog where parents announce "stable" with enthusiasm and relief. But in my mind, I have to say that I was never envious of "stable." Stable to me means that there is something there that is not supposed to be there. That something could be tumor or scar tissue or in our case, more of a mystery. But, it's something that shouldn't be there. Something that we have to monitor, to worry about, to wonder about. I really prefer NED-no evidence of disease, now that is great-nothing there that shouldn't be there. Just like the rest of us.

Clinic went well yesterday. Clinically Hannah is doing the same-daily headaches, morning stomach issues, fatigue. Her oncologist said he would like to get her somewhere between where she is now and perfect. He doesn't expect that she would feel perfect, but daily headaches at a 7/8 level are not ideal. He wanted to consult with the neurologist-who came in after but didn't offer any suggestions. She asked Hannah to maybe try and eat little bits of food more often??? She isn't my favorite doctor.

So for now, we will wait until the tumor board reviews the scans next week at their weekly meeting. Afterwards, we will find out when our next scan is scheduled for, possibly 3 months? 6 months out? Maybe they will have another idea also on something else to try to alleviate the headaches and morning nausea issues. I'm thinking maybe a month in Hawaii will do the trick! Ok, how about a week? I think right now I'll have to settle for a postcard on the fridge.


♥Kim