Monday, October 20, 2008

We had a good weekend, hope you all did too. First, our bake sale. We were hoping to have the sale this Saturday on the 25th, but I just learned that Hannah will be at a birthday party sleep over the night before. I don't want to ask her to leave early on Saturday to come and do the bake sale, so looks like the sale will be the next Saturday, November 1st. Besides just the sleep over, it's really been hard for me to get up and make the cookies. We did have some time this weekend, but I spent most of it in bed.

I was bummed that I couldn't go Saturday to our friends Tom and Sue for a party they were having. I woke Saturday morning with those flu like symptoms back...grrrr Lyme Disease. they lasted most of the day, and by Sunday I felt I had a bad hang over. I did get my Pic line in today, it wasn't too bad. They gave me a very mild relaxation med, at my request, so maybe that helped. the catheter they put in my arm was about 2 1/2 feet long, and goes all the way up to my heart. It didn't hurt, but I could feel it as they pushed it in. Home health care came by this afternoon, so I had my first dose of the iv meds. So far so good, hopefully relief will come quickly. I'm tired of being sidelined from all the things I would rather be doing!

Colby had her first 2 basketball games of the season, and her team won both! Way to go, it was fun to watch and the team is very good together! 

Hannah had riding on Saturday and riding tonight also (Dave took her.) More of those back flips...but let me explain it a bit more for all you who freaked out when I mentioned it last time! She lays across the saddle on her back. The instructor then holds her at the waist while Hannah flips her feet over her head, and flips off the horse onto her feet. Thank goodness it's a pony! 

A few angels I would like mention tonight for you to visit, if you are so inclined. I have become friends with some of these mothers, wonderful people who are still so involved in the world of childhood cancer after the death of the children, continuing on in their honor. These are really some very special angel sites:
Sweet Shelby passed away from preB ALL last year. Her site is very moving.
You all know Jessica, our special friend who died just 3 days after her 17th birthday from Grade 3 (anaplastic) astrocytoma. Her mom is a warrior in the cancer world, working endlessly on Team Unite and so much more!
Our King JuJu and Mimi his wonderful mama.
Henry lost his battle with leukemia at age 6, in June of 2007. His family, even in their grief has become quite a force in raising childhood cancer awareness and funds!
Jacob just lost his battle with glioblastoma multiforme just three weeks ago.
Katie was 13 years old, and lost her battle with Diffused instrinsic Pontine Glioma (DIPG) nearly a year ago.
Arden died at age 3 years old from neuroblastoma in August, 2008

And the list goes on.....unfortunately.....and on.....



Carolyn Wing said...

I really enjoyed your blog. Hugs and prayers. Carolyn Wing grandma to Laura Stage IV neuroblastoma pagenane LauraVDB

Anonymous said...

My mom said that she would like to make some homeade chocolate chip cookies to put in your bake sale on November 1st. YUM!! She would like you to please e-mail her with your responce.

Tori :]

Anonymous said...


P.S. on my letter above:
she makes THE BEST homeade chocolate chip cookies ever :]

Anonymous said...

Hey Guys,
Just checking in! Hannah, you are so awesome! I can't believe that you are FLIPPING off of the horse! That is soooo cool! Kim, feel better! Take time out for yourself so that you can heal up from the Lymes. :0) I know firsthand that us moms sometimes FORGET to take care of ourselves!

Have a good week everyone.
Bonnie and Gina

Lucie's mum said...

Hello there,

I am a mother of a 17 year old with stage 4 relapsed Neuroblastoma.

I have been reading your journal for a while, but have not yet left a comment.

Just to let you all know we are rooting for you!

Mother of Lucie