Wednesday, Feb. 13, 2008

Hannah was in school for the 3rd day in a row, and no problems! Our biggest issue at the moment is morning nausea. Even though she takes her prescription medicine for nausea before she even gets out of bed, she still does not want to eat in the morning. She says her stomach "hurts" and that it also "feels sick." This is not uncommon for a medulloblastoma brain tumor because that type of tumor is located in the posterior fossa. The posterior fossa is located in the skull, found near the brain stem and cerebellum, which is why it's such a delicate surgery and can sometimes cause life long complications-like balance issues, nausea, emotional issues, etc. You would think having a brain tumor is enough, you shouldn't have to live with all this other stuff too!

I have to say that today was the best day Hannah has had in a very long time. She woke up well and when I asked her if her stomach hurt, she said "not really." WOW! That's big news in our house. I have been giving her something new for nausea in the mornings, and maybe that is helping. It's a supplement from Germany, very easy to take. She had a good breakfast without me having to push her to eat, and no crying. She had 4 strawberries and 1 hard boiled egg. That is really good for her! Her eating is coming back also, there is less struggle to eat. I have not given her the shakes since she was sick with the stomach virus, and have been slowly incorporating her supplements back in also. I don't think she is too upset about not drinking those shakes. I'm going to try chocolate milk instead of the shakes and see how that goes.

I have also been trying to become more active in getting S911 Conquer Childhood Cancer Act. I found a website last night of yet another child that has died of cancer. His name is Henry Tucker and was only 6 years old when he died of a rare and aggressive form of leukemia. His family has become very active in fundraising and campaigning against childhood cancer through their foundation-the Henry Tucker Foundation. In addition to the letter writing campaign for S911 which I have mentioned before on this website, they have also initiated a telephone calling campaign (I was making calls today to Senators they have targeted who are not yet sponsors for the bill, including John McCain). I want to put more here on Hannah's site, and will load everything soon for those of you who also want to take a moment out of your day to help the cause.

I'll leave you with this latest picture of Hannah and her HAIR! Check it out, she is so very proud of it now. One more thing I should mention that some people have asked me about-Tod is NOT up for adoption, I was joking (well, kind of).

xoxo Kim