For those of you who have been with us for a while here, you have heard us talk about Coleman and his family. That poor little boy has been through so much, most recently stem cell transplant which was so difficult on his little 4 year old body. This week his family learned that he still has active cancer cells in his spinal fluid. I just stopped when I read that on their website, it's so heartbreaking. He has already been through the highest dose of chemo, maximum radiation and stem cell. Where is there to go now? There is not really anything out there for recurrent medulloblastoma, sadly. Coleman is in God's hands, we have been praying for him and I know their family would appreciate your prayers at this difficult time too. His website is HERE if you would like to stop by.
The summer continues and we're enjoying days with a bit more time. We have been enjoying the pool, especially since the lawn was just completed, and no more huge dirt pile in the back yard. It's absolutely beautiful, nearly finished. The heater and filter need to be moved over, then the deck completed. Thus, we don't have the stairs completed yet, so Hannah can't get in and out by herself, but it's ok since I'm there with them anytime they are swimming anyway.
The town came last week and denied our final approval for the pool. They said our fence wasn't sturdy enough, the gates opened the wrong way and the entire thing had to be REDONE! I tried to reason with him a bit, the fence is really adequate, but he says that a small child would be able to somehow bend the wire and take it off the fence and get in. I guess we need stronger gauge wire, or a separate fence around the pool itself in the middle of the yard! Oh boy, after a few minutes, I couldn't even speak to him anymore. He left. Dave has already redone the gates, so we're working out the rest.
Hannah goes for her dexascan (bone density scan) tomorrow. It's similar to an xray, very easy and quick. We also have to have her blood drawn at the lab here, I've been putting that off since it won't be pretty, but we'll go in the next couple of days. These two things together should give us a clearer picture regarding the osteopenia.
Everything else is status quo. Her nausea seems in check with the two medicines she takes every morning. Her emotional state is the same, cognitive issues the same and balance issues the same. Sometimes LOTS of energy and laughs, take a look at her on this video!!
♥♥♥ Kim ♥♥♥
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